Indiana Health Information Exchange Stays on the Cutting Edge
Indiana has a long history of health information exchange, shaped with help from the Regenstrief Institute and the Indiana Health Information Exchange.
This story began in the 1970s, when the Regenstrief Institute created the first electronic health record system. In 1993, Regenstrief created the Indiana Network for Patient Care to enable data sharing among hospital emergency departments serving Indianapolis—perhaps the first “health information exchange” in the nation.
This clinical data-sharing repository was formed from the alliance of the five largest hospital groups in Indianapolis and supported by the Regenstrief Institute.
A neutral data steward
“As the value of INPC became clear and EHRs became more common, Indiana researchers, business owners, and hospitals met and determined that INPC needed a data-neutral manager with a business focus,” said Indiana President and CEO John Kansky. Exchange of health information.
“In 2004, the IHIE was founded as a separate 501(c)(3) non-profit organization to safely manage and grow INPC,” he continued. “To this day, INPC remains at the heart of how to fulfill our mission – to improve health and healthcare through information exchange.”
The INPC is the nation’s largest cross-organizational clinical data repository, according to Kansky. IHIE, as data steward, is independent of vendors and customers and does not own any of INPC’s data.
“IHIE manages the data and ensures it is protected on behalf of our customers,” he said. “We have a customer-based governance committee to ensure that data is used in the manner approved by customers. IHIE is responsible for developing and maintaining products and services derived from IHIE’s unique data asset. INPC.
“As we intentionally work to build and expand our relationship with the state government, we believe that many HIEs would benefit from expanding their service offerings in the marketplace and building their revenue base from fees paid in exchange for value.”
John Kansky, Indiana Health Information Exchange
“As the statewide health information exchange and health data utility for Indiana, IHIE leverages Indiana’s data, governance processes, and fabric of trust. ‘INPC between its participants to meet as many of the state’s health data needs as possible,” he continued.
This means developing and delivering services to healthcare providers, but also to multiple state government agencies, federal government agencies, health insurance companies and other citizen health stakeholders, he added.
Over 30 years of data
The INPC comprises over 30 years of data, which the IHIE manages in a dynamic yet production-oriented HIE environment. HIE’s expertise in the area of integrating acute and ambulatory EHRs (including laboratory systems, health plan administrative claims systems, drug data, public health) positions IHIE as one of the largest and most mature health information exchanges in the United States, Kansky said.
“We were able to amass over 13 billion clinical and claims data items, including public health data and payer information and patient data for things like lab results, reports radiology, CCDs, transcripts, cardiology reports and more,” he explained.
“IHIE creates products and services to help customers leverage data in ways that will benefit them,” he continued. “IHIE’s services are organized into three product suites: OneCare, PopCare and GovCare.”
OneCare, PopCare, GovCare
OneCare offers systems to improve the health of every patient. The products offer interoperability and seamless delivery with EHRs and technologies that organize information around patients when and where they seek care.
PopCare includes systems that provide insight into population health. The technologies are designed to support population health efforts that serve to strengthen the community. Data and products ensure that health information follows the patient, regardless of treatment location, and helps providers identify patients requiring testing, screening and other care interventions.
GovCare services provide a comprehensive, coordinated effort to connect healthcare professionals to the state through communicable disease reporting, immunization registry programs, making clinical data available to Medicaid providers and supporting statewide data analysis.
“When creating IHIE, we started with two products: CareWeb, a secure application that displays patient information from INPC; and Docs4Docs, a clinical results delivery service that sends reports to providers. from across the country via web inbox or free EHR interface,” Kansky noted.
“Since then, we have expanded our offerings and now offer six products in our OneCare suite, four products in our PopCare suite and four products/services in our GovCare suite,” he continued. “We intend to develop only those products and services that our customers need or specifically request.”
IHIE makes information available to approximately 50,000 healthcare providers in Indiana and surrounding states.
In 2020, IHIE consolidated with the Michiana Health Information Network (MHIN). Unification under IHIE created a single, statewide health information exchange serving the entire population of the state.
“Also in 2020, the IHIE joined the fervent response to COVID-19,” Kansky recalled. “We have worked and continue to work closely with the Indiana Department of Health and the Indiana Family and Social Services Administration to support COVID surveillance activities, process and share test results. with clinicians and the state, and support dashboards for public consumption of COVID data.
“Work continued in 2021 as the IHIE added vaccine data to the dashboards,” he added. “We received a grant from HHS for an ONC STAR project to make immunization data more easily accessible to local health and community officials.”
Through this initiative, the IHIE has provided county-level COVID-19 vaccination data on its website in seven different languages. The data reflects not only the number of vaccinated individuals in each geographic area, but also the social vulnerability index of those census tracts.
Generate revenue through products and services
“As an independent HIE that is not directly funded by the state, IHIE is focused on creating value for its participants,” Kansky said. “For the past 18 years, IHIE has been an autonomous, non-profit health information exchange. We generate revenue by offering products and services that our participants enjoy and will pay to use.
“As we intentionally work to build and expand our relationship with the state government, we believe that many HIEs would benefit from expanding their service offerings in the marketplace and building their revenue base from fees paid in exchange for value,” he advised.
IHIE takes its role as data guardian and data security very seriously.
“We are currently going through HITRUST recertification,” Kansky noted. “We spend a lot of time and effort ensuring that our staff are aware of privacy and security policies and that we follow strong and secure processes and procedures.
“We work closely with INPC’s Legal Committee and Governance Committee to ensure that we use and share data in ways that are both legally and organizationally acceptable,” he continued.
Rapidly evolving technology
The technology for collecting and sharing data is changing rapidly.
“IHIE is always looking to understand and adapt to new and different data standards and technologies, such as APIs, including but not limited to FHIR,” he concluded. “The ability to take, store and share data is the lifeblood of our organization, so we must always be ready and able to do it in the way and when it makes sense for our customers.”